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ICON Health Publications Official Health Sourcebooks |
PORPHYRIA
A Bibliography, Medical Dictionary,
and
Annotated Research Guide to Internet References
(delta-aminolevulinic aciduria; disorders of porphyrin metabolism; erythropoietic protoporphyria; Gunther's disease; Günther's disease; hereditary coproporphyria; pyrroloporphyria)
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Pages | : | 188 |
Price | : | $28.95(USD) |
ISBN | : | 0597845549 |
Published | : | 2004 |
Synopsis | |
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with porphyria is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. |
Related Conditions/Synonyms | |
delta-aminolevulinic aciduria; disorders of porphyrin metabolism; erythropoietic protoporphyria; Gunther's disease; Günther's disease; hereditary coproporphyria; pyrroloporphyria |
Description |
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This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to porphyria. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to porphyria. If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages. |
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Table of Contents |
Forward Chapter 1. Studies on Porphyria Overview The Combined Health Information Database Federally Funded Research on Porphyria E-Journals: PubMed Central The National Library of Medicine: PubMed Chapter 2. Nutrition and Porphyria Overview Finding Nutrition Studies on Porphyria Federal Resources on Nutrition Additional Web Resources Chapter 3. Dissertations on Porphyria Overview Dissertations on Porphyria Keeping Current Chapter 4. Clinical Trials and Porphyria Overview Recent Trials on Porphyria Keeping Current on Clinical Trials Chapter 5. Patents on Porphyria Overview Patents on Porphyria Patent Applications on Porphyria Keeping Current Chapter 6. Books on Porphyria Overview Book Summaries: Online Booksellers Chapters on Porphyria Directories Chapter 7. Periodicals and News on Porphyria Overview News Services and Press Releases Academic Periodicals covering Porphyria Chapter 8. Researching Medications Overview U.S. Pharmacopeia Commercial Databases Researching Orphan Drugs Appendix A. Physician Resources Overview NIH Guidelines NIH Databases Other Commercial Databases The Genome Project and Porphyria Appendix B. Patient Resources Overview Patient Guideline Sources Associations and Porphyria Finding Associations Appendix C. Finding Medical Libraries Overview Preparation Finding a Local Medical Library Medical Libraries in the U.S. and Canada ONLINE GLOSSARIES Online Dictionary Directories PORPHYRIA DICTIONARY INDEX |
Excerpt (Introduction) |
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In addition to offering a structured and comprehensive bibliography, this medical reference on porphyria will quickly direct you to resources and reliable information on the Internet, from the essentials to the most advanced areas of research. Public, academic, government, and peer-reviewed research studies are emphasized. Various abstracts are reproduced to give you some of the latest official information available to date. Abundant guidance is given on how to obtain free-of-charge primary research results via the Internet. E-book and electronic versions of this book are fully interactive with the Internet. For readers unfamiliar with the Internet, detailed instructions are offered on how to access electronic resources. For readers unfamiliar with medical terminology, a comprehensive glossary is provided. For readers without access to Internet resources, a directory of medical libraries, that have or can locate references cited here, is given. We hope these resources will prove useful to the widest possible audience seeking information on porphyria. |
Words Defined in the Vocabulary Builders |
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